Shirley and I experienced our second visit to Memorial Sloan Kettering today. Getting her pre-op done in preparation for tomorrow's surgery. FILO, started at 8 am after walking up from Grand Central and arrived home after 6 pm. Back in tomorrow by car despite POTUS being on the east side of Manhattan. We are old hands now and seem to take it in stride, though I shudder at the thought of more surgery and excising her melanoma. Necessary, but a bitch.
Monday, July 20, 2015
Thursday, May 22, 2014
Savoring a beautiful day in Bruce Park...
HOW TO SLEEP LIKE A LOG AND MANAGE STRESS NATURALLY
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Thursday, May 29th 2:00 PM
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The Friends and Staff of Cos Cob Library welcome Michael Mendribil, ND who will unlock the mysteries of stress hormones and how they get in the way of a good night's sleep and a joyful and productive life. Michael Mendribil will uncover the roots of this common problem and explain which supplements, herbal and nutritional protocols, and lifestyle adjustments might help. If you or someone you know has difficulty sleeping or is over-stressed, come and hear how you can start to sleep well and manage your demanding life.
No registration is required for this program.
In the Community Room of the Cos Cob Library
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Saturday, November 10, 2012
Pregnancy cravings?
Remember Pregnancy Cravings?
They’re Back.
Odd,
but true, if you’ve been through pregnancy with your wife, you’ve had
preparation for some of the rigors and nuances of treatment for breast cancer,
whether surgery, chemotherapy, hormone therapy, radiation therapy or a
combination of all of these. In
Shirley’s case, following her first modified radical mastectomy, we had six
months of chemotherapy and hormone therapy, then six weeks of daily radiation
therapy, followed by another six months of chemotherapy. It was a long year for both of us. She was the one getting zapped, as she called
it at the time, but we were
experiencing treatment.
Shirley
applied a lesson from pregnancy to her approach to chemotherapy. When she was pregnant with our daughter, Alison,
a friend told her that not all women have severe morning sickness. That knowledge or suggestion led her to a
pregnancy with relatively little or mild morning sickness. Mind over matter? The power of self-talk?
Shirley
understood in her soul that each of us is unique. Each of us reacts in our own unique manner to
chemotherapy. One size does not fit
all. As a result, her experience with
her very aggressive treatment regimen was relatively mild, at least when
compared with horror stories about chemo.
She did have her moments, but understood she was getting closer each
time to the end of treatment and staying alive.
The
other parallel to pregnancy was food cravings.
I would often be asked to pick up Chocolate
Chocolate Hagen-Dazs ice cream, or some other food or beverage she was
craving. This ran the gamut from pretzel
sticks as a munchie to eating peppermint candy to get rid of the metallic taste
left by her chemo treatment. All of
this, of course, meant that I was often the family shopper, picking up the
groceries, a task long since reclaimed by Shirley.
Friday, November 9, 2012
Cook A Meal
Shirley
has always been and remains a great cook, whether making a fancy meal or
emptying the refrigerator of all leftovers for a delicious soup. But now is the time to give her a break. You prepare meals from start to finish:
shopping, preparing, cooking, serving and especially cleaning up
afterwards. That means the whole job, so
once again she saves her strength and energy for the important work at hand.
Men
are supposed to be the world’s greatest chefs, so be one. Bring out your creative and nurturing side,
figuratively and literally. Develop a
new talent or build on an old one. Are
you out of practice because she’s such a good cook, now’s the time to plunge
back in. Develop your talent. Life is
much more enjoyable being a Renaissance man, a multi-talented person using both
your right and left brain.
And
she may want simple things, as not all food appeals during the course of her chemotherapy
treatment. Bon appetit.
Monday, October 29, 2012
Sandy 3, Peter 0 - No New York Post
Help With Your Child or Children
Shirley
and I have been blessed with one child, our daughter, Alison, who was three
years old when we started Shirley’s treatment.
Dick Hollister, her oncologist, gave us a choice following her surgery:
the option of having more children or aggressive treatment that might save Shirley’s life, a long shot
at best, but a remote possibility. Our joint
decision, our opting for her life, took a nanosecond.
Raising
Alison, being her mother, was Shirley’s passionate mission. It was her reason for living and surviving,
for beating her cancer. Her only major
regret or concern was whether she would live to see Alison grow up, become a
woman, pursue her dreams, find love, marry, and, God willing, make her a grand-mother. There is simply no joy comparable to being a
parent, whether a mother or a father. No
happiness is greater than being with your child and experiencing their
growth.
Shirley
was an accomplished, talented elementary school teacher. She might have sought full time employment,
but cancer changed her course and our course.
She worked part-time instead in elementary school and early childhood
education in order to enable her to be home for Alison. She was for all intents and purposes a
full-time Mom, the noblest and most difficult of career choices. It was and is a difficult economic squeeze
that allowed Shirley to live her passion and be a real Mom. If you meet Alison today, you’ll know she
made the right choice.
Your
children need both of you. Depending on
their age, they may or may not really understand what is happening, or share
your anxiety and fears. They will know
that something is amiss. They need you
both. And she will need you to take over
more and more as chemotherapy or radiation take their toll, making her tired
and sick, taking away her energy and leaving her in need of rest.
She
is a warrior doing battle. To win
ultimate victory, let her husband
(what a marvelous word) her strength and resources. She will do what she can. She will want to be involved. But you need to step in seamlessly when she
needs down time. Can you give a greater
gift?
And
our joyous update is that Shirley and I together walked Alison down the aisle
on May 27, 1011 to wed the world’s ultimate romantic, a Renaissance man who
gives her joy, love, and respect every day: Pete D’Alessandro. Alison today is
a talented writer pursuing her dreams in Hollywood.
Sunday, October 28, 2012
No more mid-life bimbo
Let Her Know You’re There
for the Long Haul
Remove
any fear of abandonment. It has been
reported that 7 of 10 husbands leave and divorce after their wife is diagnosed
and treated for breast cancer. Not very
good for we men, however, the same rate of breakup is true for almost any
trauma in a couple’s life, such as a child with severe disabilities. If a marriage relationship is weak already,
not well grounded, it can be torn asunder.
Conversely, a basically solid relationship will become better and richer
getting through an adversity like this.
We
as a culture are experiencing a 60% divorce rate with or without trauma as a
precipitating “cause.” We now read about
young people having “starter marriages” as a prelude to or preparation for a
“real” marriage. Whatever happened to
“in sickness and in health” or “until death us do part.” Be a real man. Love her. Reassure her.
Remember the love and the friendship that brought you together. Stay with her. Grow with her. Let her complete you as she
did before cancer struck. Your wedding
vows are sacred. They are meant for a
lifetime.
When
the dust settles after this battle, a real man is still standing together with
his soul mate, his lover, his bride, his partner for life, and, if so blessed, the
mother of his children.
Tuesday, October 23, 2012
You will be glad you did this.
Go to Her Appointments
Go
to the multitude of appointments with your wife, your partner, as much as you
can, holding her hand literally and figuratively. In 1982, I had the luxury of relative
independence in my 24/7 position as the CEO of an innovative and unique
community health education and wellness center.
I built my profes-sional and community calendar around Shirley’s
treatment schedule. I went with Shirley
to virtually every physician visit, every chemotherapy appoint-ment. I felt a bit guilty about sitting in the
waiting room, not going into the exam room with her for the actual
treatments. Perhaps a bit of a wimp or
squeamish, but I was with her in mind, body, and spirit every step of the way.
If it were possible, I would have taken it for her, traded places with her.
It
is not what you do when you accompany her to treatment, but rather the act
itself that speaks volumes to her. It
also gives you some sense of empowerment.
You are more than a helpless spec-tator cursing the damned disease. You have joined the battle. You are helping wrest control from the cancer
along with your wife, your family and friends, your treatment team, and all of
the support system around you.
There
is also a practical side. Hearing a
diagnosis of cancer overwhelms the senses.
Doctors try to help you understand, but their daily jargon, the language
of medicine, might as well be classical Greek or Latin. With two of you there, there are two sets of
ears to hear what is said. There are two
mouths to ask questions. This helps
avoid the tendency to hear what you want to hear. Being with her each time will reassure her,
help her overcome, and make you feel good about yourself. She’ll love you for it.
Go to Her Appointments
Go
to the multitude of appointments with your wife, your partner, as much as you
can, holding her hand literally and figuratively. In 1982, I had the luxury of relative
independence in my 24/7 position as the CEO of an innovative and unique
community health education and wellness center.
I built my profes-sional and community calendar around Shirley’s
treatment schedule. I went with Shirley
to virtually every physician visit, every chemotherapy appoint-ment. I felt a bit guilty about sitting in the
waiting room, not going into the exam room with her for the actual
treatments. Perhaps a bit of a wimp or
squeamish, but I was with her in mind, body, and spirit every step of the way.
If it were possible, I would have taken it for her, traded places with her.
It
is not what you do when you accompany her to treatment, but rather the act
itself that speaks volumes to her. It
also gives you some sense of empowerment.
You are more than a helpless spec-tator cursing the damned disease. You have joined the battle. You are helping wrest control from the cancer
along with your wife, your family and friends, your treatment team, and all of
the support system around you.
There
is also a practical side. Hearing a
diagnosis of cancer overwhelms the senses.
Doctors try to help you understand, but their daily jargon, the language
of medicine, might as well be classical Greek or Latin. With two of you there, there are two sets of
ears to hear what is said. There are two
mouths to ask questions. This helps
avoid the tendency to hear what you want to hear. Being with her each time will reassure her,
help her overcome, and make you feel good about yourself. She’ll love you for it.
Go to Her Appointments
Go
to the multitude of appointments with your wife, your partner, as much as you
can, holding her hand literally and figuratively. In 1982, I had the luxury of relative
independence in my 24/7 position as the CEO of an innovative and unique
community health education and wellness center.
I built my profes-sional and community calendar around Shirley’s
treatment schedule. I went with Shirley
to virtually every physician visit, every chemotherapy appoint-ment. I felt a bit guilty about sitting in the
waiting room, not going into the exam room with her for the actual
treatments. Perhaps a bit of a wimp or
squeamish, but I was with her in mind, body, and spirit every step of the way.
If it were possible, I would have taken it for her, traded places with her.
It
is not what you do when you accompany her to treatment, but rather the act
itself that speaks volumes to her. It
also gives you some sense of empowerment.
You are more than a helpless spec-tator cursing the damned disease. You have joined the battle. You are helping wrest control from the cancer
along with your wife, your family and friends, your treatment team, and all of
the support system around you.
There
is also a practical side. Hearing a
diagnosis of cancer overwhelms the senses.
Doctors try to help you understand, but their daily jargon, the language
of medicine, might as well be classical Greek or Latin. With two of you there, there are two sets of
ears to hear what is said. There are two
mouths to ask questions. This helps
avoid the tendency to hear what you want to hear. Being with her each time will reassure her,
help her overcome, and make you feel good about yourself. She’ll love you for it.
Friday, October 19, 2012
Remains the case as we celebrated 36 years...
I Love You, Not Your Breasts
Despite
our nation’s growing obesity, we are a breast and body image fixated society,
from Betty Grable pinups in World War II, Marilyn Monroe and Jane Mansfield in
the 1950’s and 1960’s to Salma Hayek and Pamela Anderson today. Men talk about being “leg men” or “breast
men” with bravado and sophomoric stupidity, as if large breasts or great legs
has anything at all to do with being a woman, or a lifetime companion, or a
long-term, intimate lover.
Now,
don’t get me wrong. I still like to look
at and admire beautiful women from the gorgeous 76-year-old former model in a
smoking cessation class in 1982 to the stars and women around me. However, it is my bride, my lover, and my
lifetime partner who is my sexual and sensual interest today. Your bride, your lover, your partner needs to
know that you love who she is, not what type of body she has or the size of her
breasts.
Shirley
is as beautiful and sexy today as she was on our first date, if not more
so. Our love making then and today was
not and is not hampered by her having one breast instead of two, or now none. Rather, it enriches our intimacy. When we make love, she completes me, makes me
whole and alive. God created a matching
set that fits together nicely. Your
bride needs reassurance in the face of an assault on her femininity and sense
of womanhood. She needs to know by what
you say and what you do that this set of circumstances is not the end of your
sex life, but rather a new, sometimes frightening, and exciting sex life with
heightened sensitivity and caring.
Monday, October 15, 2012
Not easy for a child of the 60's
Being There
Your
partner, your wife to whom you have pledged a lifetime commitment, needs to
know you are there. She needs a feeling
of security. She wants to know that you
meant what you said about being together in sickness and in health. Women need, want, and deserve a feeling of
security. You are responsible for
letting her know and feel that you’ll be with her today, tomorrow, and forever.
Here
we are today, 36 years of marriage later.
It was less than easy, but has been steady, up hill, growing, maturing
and becoming what God had intended, including being a loving, faithful
husband. That was foreign territory to a
love child of the 60’s, but sweeter and sweeter as the years went by. It was only through this long, often painful,
process that I fully understood the meaning of marriage vows, the sacred nature
of a marriage, and its importance as the cornerstone, the indispensable and
fundamental foundation of civilization as we know it
Sunday, October 14, 2012
She knows best
Follow Her Lead
Your
partner, your bride, knows how she can best deal with her breast cancer. In Shirley’s case, she opted for minimal
information from day one. She chose to
rely on Dick Hollister and Joe Murphy to let her know how she was doing in the
simplest of terms. Good or bad blood
count, for example, not the numbers, not analysis.
There
is no “right” way or “wrong” way. It is
her way, her journey, her path. Some patients with cancer try to become
oncologists in a heartbeat, reading, reading, and reading more medical literature. Seeking out more and more information, perhaps
seeking second, third, and fourth opinions.
Others may rely on their physician, a man or woman dedicated to healing
and life, to be their coach and guide them through the process. Whatever path you choose is the right path
for you.
Shirley
was the Joe Friday of cancer patients, asking for the facts, nothing but the
facts. And keep it short and
simple. Shirley did not feel a need to
hear or be given all the numbers from her ongoing testing, retesting, and
testing again. She chose to rely on her
physicians, particularly Dick and Phil and their staff, to keep her current
with the simplest of terms. Was a blood
count good or bad, for example? She did
not need or want to hear the numbers.
She did not want to analyze her situation. We knew, she knew, that she was “playing for
all the marbles,” so the outcome was critical, not the steps in the process of
survival.
Other
women may opt to become overnight medical students or aspiring physicians,
trying to learn in an instant what a physician has studied and absorbed over
eight years or more. For Shirley and for
me, despite my being a clinical social worker and a “health care professional,”
simple was best. A sound
physician-patient relationship is built on mutual respect and trust. It enhances your healing. Trust the coach and run the play.
Saturday, October 13, 2012
You are not alone
Cry
Real
men cry. Real men feel. A good cry is cleansing for the heart, mind
and soul. When Shirley’s mother, Marge,
and I went home after taking Alison to school, we held on to each other for
dear life and wept, inconsolably. We
each needed to let out the pent-up feelings of anger, helplessness and
fear. She feared the loss of a child,
her eldest, and her only daughter. I
feared the loss of my bride, my partner, my lover, the mother of my one and
only child, Alison, who was then just 3 years old. I feared becoming a single parent. How could I, a man, possibly raise a girl,
bring her through the formative years and adolescence into adulthood? Was I going to have to date again to find a
mother for my daughter, oh, what a wretched, frightening thought.
During
the first days after surgery, then over the weeks and on into months, I often
found myself alone in the car, driving home, heading to work, whatever. I would
be overcome by fear, which was really a lack of faith. Fear and faith cannot co-exist. When emotions hit full blast, I found myself
sobbing uncontrollably, tears running down my face, sobs racking my body.
But
are there not positive images of men facing loss and pain? There is the classic Frenchman with tears
streaming down his face when Nazis occupied Paris .
Do not men in battle cry when a comrade falls? Crying releases your pent
up emotions: anger, fear, sadness, pain, and denial. Crying is a safety valve, a mini volcano
releasing the pressures from deep with-in your soul and being. Cry.
You feel. You are hum-an and
graced.
Hug
a friend and cry on his or her shoulder. That hug lends understanding, strength
and comfort.
Friday, October 12, 2012
AATH 2006 Book of the Year
Humor Heals
Norman
Cousins taught the country this lesson about the healing power of humor many
years ago and we are often reminded of this truth. We know that the act of
laughing is healing. It makes us feel
better and helps us get better. It is
very easy to take ourselves in particular, our careers, and our work much too
seriously.
Close
friends have experienced our occasional over-the-top, out of control laughing,
true guffaws, and sometimes snorting. Does
anything feel better? You cannot laugh while
feeling sorry for yourself. Seeing the
humor in any situation brings relief and release. Did you hear about the drunk who got a
“speeding” ticket after passing out at the wheel of his car? A tragedy when it
happened, yes. Being able to laugh at
the incident in hindsight brings understanding and relief. Our favorite apocryphal joke is about hitting
a pig, reporting the accident anonymously and getting a ticket in the mail for
$500. And how did they find us, you ask:
“The pig squealed.”
Shirley
set the stage for our approach to her treatment for breast cancer, which
included large doses of humor from day one.
As she was wheeled in for her first mastectomy, laying on a gurney just
outside the operating room, she looked up and said to her surgeon, Phil
McWhorter: “Hey, Phil, you ought to
charge me half price. I’m pretty
small.” She was the epitome of courage,
strength, and fortitude. She was then
and is today a winner.
A
year later in 1983, Shirley suggested to the hospital’s then President & CEO
that she was being over charged for her mammogram, that she should get a 50%
discount. After all, they only had to take a single x-ray image, not two. What’s fair is fair. She left him speechless. It just makes sense to me.
And
there was her relationship with her oncologist, Dick Hollister, and his
incredible office staff. Do you realize
that over 95% of cancer treatment takes place in a physician’s private office,
not in a hospital? If you choose to work in oncology, you know from the get go
that at least 50% of your patients will die as a result of their disease. And yet Dick and his staff always provided
hope, comfort, and, best of all, large doses of laughter and humor.
Dick
made the choice to become a doctor and treat patients with cancer at age 13
according to his mother, at age 11 according to him. He was the perfect match for Shirley, who
turned him bright red (fairly easy given his red-head’s freckled complex-ion),
when she whipped out her temporary breast prosthesis during his first visit to
her hospital room. He was
speechless. He knew he had a live one,
despite the poor prognosis. Shirley was
an interesting and challenging case for a new oncologist in his first few years
of practice. Jokes were a staple in his
office during the course of our year of treatment. Humor is healing to body, mind, and spirit.
Wednesday, October 10, 2012
Ask and it shall be given
Say “Yes” to Help
We
all know the classic joke about Moses and the tribes of Israel
wandering for 40 years in the desert after their miraculous escape from bondage
in Egypt . It took 40 long years to reach the land of
milk and honey, the Promised Land. And
why, why did it take so long? Moses was
a man. He refused to ask for directions. Ten Commandments, maybe; asking for help,
never.
If
you’re married or even dated a man for any length of time, you’ve spent time in
a car lost. You suggest, perhaps timidly
and quietly, that it might be a good idea to stop and ask for directions. He is offended. He, after all, is a man. He has a good, no, a great sense of
direction. That will become apparent to
you, a mere woman with no sense of direction, momentarily. The moments tick by. He is becoming exasperated. Finally, in disgust, he pulls into a gas
station and asks for help. It pains him
to do so.
Louise
Crisafi taught me to accept help when I asked her what to do knowing that
Shirley and I were facing her cancer together, a cancer we had little hope of
beating. Her advice was powerful, wise,
and insightful. When someone, anyone,
asks if they can do anything to help, just say: “Yes.” Friends, neighbors, colleagues and others
want to be there for you and for themselves.
I know, I know. You’re a man and
never ask for help, not even simple directions.
Understand that the people asking to help need your “Yes” as much as
you. It gives them some sense of being
able to do something positive about this insidious disease that seems beyond
their control. They want to do something,
anything.
Shirley
and I were blessed. We did not have to
cook a meal for 3-4 months following her 1982 surgery thanks to the chicken
dishes, casseroles, lasagnas and other assorted goodies constantly flowing to
our front door. Need a brief childcare
stint for our daughter, Alison? It would be there.
Thank
you in particular First Congregational Church in Old Greenwich. You are a healing church. Thank you special Friends of Bill, particularly Betsy, a mentor and counselor, who together
taught me I could get through anything, even this. You were and are true
friends to the present day. Your love,
prayers and support made a difference for all three members of our family. You got us through both of these cancers and
life’s travails one day at a time.
Bottom
line? Ask for help. Accept help. Say “yes” when it’s offered. You’ll be better for it and so will those
seeking to be of service.
Tuesday, October 9, 2012
Avoid being a caricature of a man
Be Faithful. Be Monogamous.
We
do not hear espoused or celebrated often enough the value and benefits of
faithfulness, fidelity and monogamy. Nor do we hear of the sacred nature of
marriage and its profound role in the social contract. A long term, monogamous
relationship is exquisitely intimate.
An
acquaintance, a woman, said of my espousing faithfulness and monogamy: “How
quaint,” as in charming, old fashioned, unusual or unfamiliar, even strange.
And then I look at our role models, Shirley’s late parents, Art and Marge
Billings, married for more than 69 years.
That is the goal. We find in it our deepest nature, our essential and
fundamental selves. We become acutely
perceptive of each other in a relationship that is intense and keen. It is as delicate and beautiful as a
snowflake, as hard and lustrous as a diamond.
As
a man, you will understand with certainty that your wife truly completes you in
every way: physically, emotionally, and spiritually. You owe it to her and yourself to develop the
depth of understanding brought on only by being faithful for life. God meant us as marriage partners to be one
together for life. Swans do it, so can
we.
Monday, October 8, 2012
Louise Crisafi points me in the right direction
Tell Her You Love Her
In
a marriage or any intimate relationship, silence is not golden. The strong silent type need not apply for the
position of husband, lover, best friend, confidante, caregiver, and supporter
of a woman with breast cancer. Your
bride, your wife, your partner needs and wants to hear from you. Actions may speak louder than words, and you
may take all the right actions, but speaking words brings comfort, reassurance,
and knowledge of your inner feelings.
She cannot read your mind. Being
there for her is more than physical or economic security. Words have meaning. And the three most important words in the
English language at this time, at this moment, when together you face her
mortality, are: “I love you.”
The
late Louise Crisafi, a saint here on Earth, always giving of herself for others
in need, taught me this lesson on the Friday Shirley had her biopsy and was
diagnosed, having opted for what was then a new two-step process. This meant we
knew on Friday that she would have a mastectomy on Monday, a weekend together,
scared, anxious, frightened. For
Shirley, confronting death and permanent loss of part of her womanhood. For me, just at a loss and floundering, not knowing
what to do or what to say.
Louise
was an American Cancer Society Reach to
Recovery volunteer, as well as a YWCA Encore
volunteer leader, devoted to helping other women facing breast cancer
diagnosis and treatment. She was a good
friend and confidante. When I asked
Louise what to do feeling as helpless and overwhelmed as I was, she said
simply: “Tell her you love her.” I was
off to the races. I spent the weekend
saying those magic, powerful words over and over, as frequently as possible,
perhaps more than I had done in weeks, months or years previously.
A
year or so later in a television talk show featuring three women with breast
cancer, including Louise, Shirley reminisced about how verbal I had become that
fateful first weekend. Those words
brought comfort and made a difference.
Say “I love you.” It works. And I hope I do so as much or more today.
Sunday, October 7, 2012
The journey together begins
Our Family Odyssey:
A Journey Together
Our
family’s incredible healthcare odyssey began in the summer of 1982 in Winter
Harbor, Maine, when Shirley took part in a hokey Lobster Festival parade. She felt something in her right breast,
attributed it to a pulled muscle from aerobics in the parade, or perhaps the
lumpy horse hair mattresses we slept on and made love on. Her woman’s intuition knew better, but denial
is powerful.
The
inexorable movement toward diagnosis and treatment began in the Fall, starting
with her internist, Jeffrey Weinberger, then a local gynecologist, followed by
a man who was about to become her surgeon, Phil McWhorter, a superb physician. The
final step was seeing her oncologist, Dickerman Hollister, Jr., a Renaissance
man who, along with the late Joseph Murphy, her radiologist and radia-tion
therapist, ultimately saved her life.
The
initial diagnosis was devastating.
“We’re too young. I don’t want
her to die. I can’t live without her.” The Kubla Ross five stages set in: denial,
anger, bargaining, depression, and acceptance. “ I do not want to be a single
Dad raising a child, a little girl, on my own.
God did not mean for it to be that way. “ And yet that’s what we seemed
to be facing or I was feeling.
Shirley
knew from her conversations with Phil and Dick that she had close to the worst scenario
possible: extensive lymph node
involvement, an aggressive metastatic form of breast cancer with a very poor
prognosis. Phil punched me in the gut with
his words following her surgery: “The tumor was too large and too deep into the
chest wall for me to remove it completely.”
Shirley
would need extensive chemotherapy, horm-one therapy and radiation
treatment. The world was turning
dark. A year or so following her
surgery, Shirley commiserated with former First Lady Betty Ford on the dance
floor at a charity ball in New York . That was when I first learned of or was able
to take in that many, many lymph nodes were involved. I never shared Phil’s words with her until
years later.
Our
first sit down together with Dick Hollister was a moment to remember. We were “playing for all the marbles.” Did we
want to save Shirley, maybe, highly unlikely, or did we want to leave open the
option of additional children in the future?
Our joint response took a nanosecond.
Dick walked us through his pro-posed regimen or course of treatment: six
months of chemotherapy and hormone therapy, followed by six weeks of radiation
therapy, and then another six months of the same strong chemotherapy and hormone
therapy. He also offered us sources for
second opinions in New York or Boston, followed by telling us he would take our
case and his proposed treatment protocol to Yale-New Haven Hospital for re-view.
It was a no brainer for both of us then, and even now in retrospect.
Medicine
is built on relationship and trust. A good physician is still a hands-on healer,
despite all the technology and resources to be brought to bear. We opted for Dick. We opted for and received
life. Precious, precious, life and health
Friday, October 5, 2012
What's in store in the next few weeks
Prayer, Laughter & Broccoli
Being There When Your Wife Has Breast Cancer
Being There When Your Wife Has Breast Cancer
Contents
Our Odyssey
Tell Her You Love Her
Be Faithful. Be Monogamous.
Say “Yes” to Help
Humor Heals
Cry
Follow Her Lead
Being There
I Love You, Not Your
Breasts
Go to Her Appointments
Let Her Know You’re
There for the Long Haul
Help With Your Child or
Children
Eat Your Broccoli
Cook A Meal
Remember Pregnancy Cravings? They’re Back
Be Available by Phone
She Is Not An Invalid
Take Over on
Chemotherapy Nights
You Can Make A
Goof. Do Not Buy Her A Scarf or Head
Covering
Learn From Prostitutes
Another Lesson From
Prostitutes
Pray
She Is Your Trophy Wife
Use Complementary or
Alternative Medicine
Use the Serenity Prayer
Lemonade From Lemons
Anger
One Day At A Time
Avoid Doom and Gloom
Have Fun
She Is Not Damaged Goods
Chivalry Is Not Dead
Read Proverbs
Psalms for Health and
Healing
Be Trustworthy
Be A Good Listener
Take Her to Treatments
Bring Her Home if She
Wants to Be Home
What You Say
Believe In Miracles
Bride for Life
Pay It Forward
Be Passionate About Life
Enjoy the Mundane
Chemotherapy
Radiation Therapy
Hormone Therapy
You Are Both A Miracle
Synchronicity
Thoughtful Gifts
Speak Up for Her and for
You
Good Patient, Bad
Patient
Mastectomy, Lumpectomy
and Reconstruction
Sex After Breast Cancer
Alive
Support Groups
BRCA Testing
Epilogue
BRCA Testing
Epilogue
Reflections by Alison
Flierl
Growth
Scared
A Daughter’s Letter Home
Notes from November 8-9, 1982
Notes from November 8-9, 1982
Thursday, October 4, 2012
Acknowledgements - family, friends, church
Acknowledgements
Our family would like to acknowledge the love and support of many special friends and people who have helped us over the bumps and still enrich our lives. This includes friends like Lucy Hedrick, Frank and Ellen Schigg, Bill and Jackie Hammock, Steve and Winnie Legere, Jan Durgin, and Phyllis Finn. First Congregational Church and our friends and colleagues in 1982 saw to it that we did not have to cook a meal from scratch for months after the start of Shirley’s treatment, nor did we lack for child care. We remain grateful.
Shirley
and I are both grateful for the special love, comfort and support of Dr. Bartel
Crisafi and his first wife, the late Louisie Crisafi, who together set the
standard for loving and living as a couple raising a family. Louise is a guardian angel up there looking
after us.
Most
of all, I want to thank my wife, Shirley Ann, and my daughter, Alison, for
everything. They are my life.
Wednesday, October 3, 2012
October 3, dedicated to Shirley Ann - Wife, Mother
Dedication
This
book is dedicated to Shirley Ann Billings Flierl, my bride and my life partner,
the mother of our daughter, Alison, my lover, my business partner, and my best
friend. Shirley was first diagnosed with
an aggressive Stage 3 breast cancer when she was “too young” and “too small”
and at a time when we had so much to live for.
It was her courage, faith, humor, persistence and joy that brought
Alison and me through this experience whole and better for it.
We
are commemorating and celebrating the miracle of Shirley’s survival and
recovery for 30 years as of November 8, 2012. We are bringing our family story forward to share her recovery
and survival of a second breast cancer in 2010. She has again led the charge as
together as a family we faced this second breast cancer, a new tumor, not a
recurrence. Alison and I are blessed to have this extraordinary woman, wife and
mother in our lives.
Tuesday, October 2, 2012
Day 2 of sharing our experience, strength and hope
Prayer,
Laughter & Broccoli
Being There When Your Partner Has Breast Cancer
Peter J. Flierl, MSW
Alison Billings Flierl
Editor
& Contributor
ISBN: 978-0-9745179-8-8
Grindstone
Press
Copyright
© 2003 Peter Flierl
Revised
& Reprinted 2012
All rights reserved. No part of this book may be used or
reproduced in any manner whatsoever without written permission of the
publisher. Printed in the United
States of America . For information or comments, address
Grindstone Press, 14 Le Grande
Avenue, Suite 14 , Greenwich , CT 06830
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